ACT for ALS

Washington – September 18, 2026 -- More than 20,100 Americans signed a petition in just four days demanding Congress reauthorize the Accelerating Access to Critical Therapies (ACT) for ALS law before its September 30, 2026 expiration date.

Petition drive targets key congressional committees ahead of deadline

The campaign, organized by advocacy group I AM ALS during its annual Week of Impact, directs the petition at Senate HELP Committee and House Energy and Commerce Committee leadership. Signatories include patients living with ALS, caregivers, researchers, and clinicians who rely on programs the law established.