ACT for ALS Reauthorized: Up to $500M for Research and Access
WASHINGTON – November 03, 2026 -- The President has signed the ACT for ALS reauthorization bill into law, extending the program for five years and committing up to an additional $500 million to ALS research infrastructure and investigational treatment access, according to patient advocacy group I AM ALS.
Senate passes bill by unanimous consent hours before the law expires
The Senate approved the reauthorization by unanimous consent with only hours left before the existing law lapsed. The House had already gone home early. The original ACT for ALS Act was co-authored by I AM ALS in 2021 to close a gap in access to investigational treatments.
Sponsors of the reauthorization are Senators Coons (D-DE) and Murkowski (R-AK) and Representatives Quigley (D-IL-05) and Calvert (R-CA-41). Calvert co-chairs the bipartisan ALS Caucus.